Home Cycling ‘The fact that I’m alive now is totally remarkable’ – How one rider went from cancer diagnosis to cycling 35,000km to Beijing

‘The fact that I’m alive now is totally remarkable’ – How one rider went from cancer diagnosis to cycling 35,000km to Beijing

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The ache in his shoulder had been lingering for months, but Luke Grenfell-Shaw, just 23 at the time, shrugged it off as not worth fretting about. Besides, he was too busy to worry, working as an English teacher in Siberia, Russia. Each day began with a run around the park, followed by a short bike ride to the school. He remembers not being able to lean back in his chair without wincing in pain. Eventually, it got too bothersome and he sought out the school nurse, pulling up his shirt to expose the painful shoulder. Her reaction – “oh my God” – confirmed this was no normal ache.

Curious to see what was so shocking, Grenfell-Shaw stood in front of a mirror and took a photo of his back. His left shoulder, he could see, bulged like a powerlifter’s – far bigger than the opposite side. “Ah, that doesn’t look right,” he remembers thinking – still not panicking. Within two days, however, he was back in the UK receiving a life-changing diagnosis: the lump was a rare form of cancer that had metastasised to his lungs and was now stage four – advanced and aggressive. The doctors called it a malignant peripheral nerve sheath tumour, and the medical literature did not offer much hope.

“You can see the survival rates for yourself,” he tells me, not wanting to repeat the figures. Patients with this type of cancer typically have a less than 50% chance of surviving beyond five years. Grenfell-Shaw received a prognosis of months – “two years maximum” – and yet, that was eight years ago, in 2018. Come his 26th birthday, in 2020, he was riding a tandem across the world, from his hometown of Bristol to Beijing in China, raising money for cancer charities. “I didn’t know if I’d live to the end of that year [2020],” he says. “The fact that I’m alive now is totally remarkable, and immensely…” his voice stalls. “I’m just very, very lucky. By luck more than anything else, I’m still here.”

A photo stop in Odessa, Ukraine.

(Image credit: Luke Grenfell-Shaw)

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